tag:blogger.com,1999:blog-7856422208388515286.post5341241733027879243..comments2024-01-14T00:37:33.329-08:00Comments on My Life as an Asthma Mom: Can honey help allergies? My Life as an Asthma Momhttp://www.blogger.com/profile/13702075700890289018noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-7856422208388515286.post-29708738443805271452014-06-24T14:34:12.087-07:002014-06-24T14:34:12.087-07:00Nice! I'm glad someone is helping you navigate...Nice! I'm glad someone is helping you navigate the "fun" of trying to get an insurance company to approve your medicine. It can involve a LOT of paperwork!<br /><br />Good news about Needymeds too. It's a great resource for co-pay assistance. <br /><br />I hope everything works out with getting things approved.<br /><br />Fingers crossed!!! :)My Life as an Asthma Momhttps://www.blogger.com/profile/13702075700890289018noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-4187581752075536032014-06-19T19:19:17.217-07:002014-06-19T19:19:17.217-07:00I managed to get a free sample from my doctor, whi...I managed to get a free sample from my doctor, which will last a month. I can't wait to see what it will do!! I had my social worker call my insurance and my doctor fax over all the paper the insurance wants. The lady answering the phone at the insurance was trying to tell me that many patients with cf don't respond to kalydeco. Well sweetie, only 5% of people with cf have the g551d mutation and they WILL respond to it. She had no clue what she was talking about so I had to have my social worker call and be firm with her. My social worker helps me advocate for myself. I sometimes have difficulty navigating myself with autism but I mostly live independently. I have a great roomate who also helps me. I can't drive since I have epilepsy so I have to walk or take the bus everywhere. But that's not a problem since I live in a college town. Needy Meds said they would help me with copay once my insurance gets on board which would be awesome since who has $3000 a month to pay for just one medicine. $294,000 would still be better than frequent hospitalizations and that looming lung transplant should my lung function not improve within 2 years. I live in Texas, have all my life. Houston air quality is terrible but my college town is much better. It's weird to see my symptoms change as I come home for the summer. I had lived in Houston so long I never knew there was better air quality and different allergens elsewhere. Tayloraehttps://www.blogger.com/profile/16008567444722412931noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-17569863011934073492014-06-19T14:33:13.514-07:002014-06-19T14:33:13.514-07:00I hope it helps! You may still have to go through ...I hope it helps! You may still have to go through the red tape of getting your insurance company to pay for it.<br /><br />Our doctor's office had to prove that it was "medically necessary" for our son to have Xolair injections. At $1500 a month, it's STILL less expensive for than paying for a hospitalizations. The average cost in our state now is $11,000 for 2 1/2 days in the hospital....<br /><br />I hope your insurance company approves your Kalydeco. I know it's a hassle, and it can take a month or two. Hopefully they speed things up for you! :)My Life as an Asthma Momhttps://www.blogger.com/profile/13702075700890289018noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-41472730144211073892014-06-17T21:24:15.813-07:002014-06-17T21:24:15.813-07:00Remember I am nerdy gal, I'm just on my iPod. ...Remember I am nerdy gal, I'm just on my iPod. The copay would be $3000 a month should insurance cover it. I called them and they said I need to provide "additional medical necessity documentation." Probably because I have just been recently diagnosed and haven't been seeing a specialist for that long. I'm not going to wait until I get really sick and then they start to pay attention. I will call needy meds tomorrow and ask about that and I heard the manufacturer of kalydeco offers patient assistance programs and ill probably qualify since I'm a poor college student on my aunt's insurance. And my social worker may be able to help since I do have legal guardians and I have autism and get disability assistance at college (I also have epilepsy from autism and have a seizure dog which was actually free for me). Kalydeco would cost $294000 a year out of pocket!! Tayloraehttps://www.blogger.com/profile/16008567444722412931noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-7512101684853393502014-06-17T14:53:39.397-07:002014-06-17T14:53:39.397-07:00Wow! What a journey you have been on!
I hope ins...Wow! What a journey you have been on! <br /><br />I hope insurance will cover Kalydeco. Have they told you what your co-pay will be if insurance covers it?<br /><br />One of my sons has monthly Xolair injections to control his asthma. The serum is about $1500 a month. Our co-pay is $150 each month. <br /><br />We found co-pay assistance on a website called NeedyMeds. They're a sort of clearinghouse for companies that will help pay for medications.<br /><br />I found Kalydeco on their website, these are the companies that can help with the cost <br /><br />http://www.needymeds.org/drug_list.taf?_function=name&name=Kalydeco&gname=ivacaftor<br /><br />Good luck! :) My Life as an Asthma Momhttps://www.blogger.com/profile/13702075700890289018noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-26502121496945220072014-06-16T17:24:20.410-07:002014-06-16T17:24:20.410-07:00I've been seeing a CF specialist and I'm d...I've been seeing a CF specialist and I'm doing much better. I found out I have a G551D mutation and I can be treated with kalydeco. I'm in the process of fighting with my insurance so they can cover it. Kalydeco is ridiculously expensive. In the meantime, the vest has worked wonders for me. I can get some of that mucus odd my lungs and breathe a little better. And I've gained 5 pounds after being put on digestive enzymes, I'm 5' 9" and weighed 110 pounds. Insurance companies don't consider rare diseases often, making it harder for people like me to get the meds we need. Hope your summer is going goodNerdy galhttps://www.blogger.com/profile/06007608387997935685noreply@blogger.comtag:blogger.com,1999:blog-7856422208388515286.post-17187931468904343772014-06-16T02:23:04.785-07:002014-06-16T02:23:04.785-07:00Nice written blog post!
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